About Epilepsy

Information about EPILEPSY and links to other sites of interest

Epilepsy Research foundation

john travolta's son

When her daughter was diagnosed with uncontrollable epilepsy, Susan Axelrod knew: I Must Save My Child
By Melissa Fay Greene -  PARADE - Publication Date: 02/15/2009  click here: to view article

Epilepsy Overview
About the Comprehensive Epilepsy Program at the Mid-America Brain and Stroke Institute
What is Epilepsy?
Types of Seizures
Seizure First Aid Guidelines
Proper Diagnosis
Reference Links
Affordable RxMeds. If you need prescription medicines, but can't afford to take them, visit one of America's most trusted sources for affordable prescription medications.

VNSTherapy.com Provides information to patients and their families about adjunctive VNS Therapy for medically refractory epilepsy.


The National Walk for Epilepsy  http://www.walkforepilepsy.org For the first time in history, a special event on the National Mall will highlight the importance of epilepsy awareness and the need to raise funds for more epilepsy research. Come join Walk Chair Greg Grunberg (star of NBC's "Heroes") and thousands of dedicated supporters of people with epilepsy and their families as we walk on the Mall at the start of cherry blossom season in Washington, D.C. You can also participate virtually anywhere in the country or the world to help support epilepsy. The National Walk for Epilepsy is presented by the Epilepsy Foundation and Ortho McNeil Neurologics, Inc.


National Epilepsy Foundation
The National Epilepsy Foundation

LINKS
For those in Missouri:
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free.  PPARxMO is a Web site designed to help low-income, uninsured Missouri residents get free or discounted brand-name medicines. http://pparxmo.org/

WWC has gathered together medication assistance programs to help guide you in your search for affordable or free prescription medication. You can view them either by state (PPA) or pharmaceutical laboratories.
http://www.womanswellnesscenter.com/medassist.html

IN THE NEWS
http://professionals.epilepsy.com/img/epilepsy_pro_logo.gif
Epilepsy Therapy Development Project Press Releases and other News
Sign up for their mailing list
 
http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=14695
Clinical trial studies impact of ketogenic diets on epilepsy
By THOMAS H. MAUGH II
Los Angeles Times


The first clinical trial of a ketogenic diet — high in fats and low in carbohydrates and protein — to treat epilepsy has shown that it sharply curtails seizures. It is also an effective tool for managing seizures children who are resistant to anti-epilepsy drugs. READ MORE at http://www.kansascity.com/news/nation/story/604131.html


Write your Congressional Representative and your State Legislature


Epilepsy.com/Professionals
VOLUME 4, ISSUE 9
GREETINGS FROM OUR
EDITOR-IN-CHIEF

Steven Schachter, M.D.

Along with the other changes that the fall brings, I am stepping down as editor-in-chief of professionals.epilepsy.com at the end of this month as I prepare to become the next President of the American Epilepsy Society in December.

Being editor-in-chief of this wonderful website over the past number of years has been a fantastic experience for me, and I am very grateful for the support, advice and collaboration of the Epilepsy Therapy Project, Warren Lammert, Joyce Cramer, Bill Braunlich, Orrin Devinsky, Kim Macher, Karen Dredske, Patty Shafer, Rita Watson, Jenna Martin, Jacki Gordon, May Liang, our many contributors, our editorial board, Zoomedia, and many, many others.

I am pleased to announce that Dr. Robert Fisher, Professor of Neurology & Neurosciences at Stanford University will be the next editor-in-chief of professionals.epilepsy.com. Bob is an old friend and colleague, and a fellow musician. He directs the Epilepsy Center at Stanford University. He served as editor-in-chief of Epilepsia, President of the American Epilepsy Society and as a member of the Executive Committee of the International League Against Epilepsy. He is a distinguished researcher in the area of new epilepsy treatments and frequent contributor to epilepsy.com , including the international AED database and numerous educational videos. He will introduce himself and his ideas for professionals.epilepsy.com at greater length in next month’s newsletter. Bob will be a fantastic editor-in-chief and I am confident that under his leadership, professionals.epilepsy.com will continue to develop into the best possible website for you, your colleagues, and your patients.

One of the best things about professionals.epilepsy.com is that it is provided for free by the Epilepsy Therapy Project. If you have been helped in your practice by professionals.epilepsy.com, please consider expressing your thanks by contributing to the Epilepsy Therapy Project in support of its mission to develop new epilepsy treatments. It's simple, and no gift is too small! Just go to http://www.firstgiving.com/joycecramer-etp, click on “GIVE NOW”, and you’ll be on your way to making life better for patients with epilepsy.

Highlights for your patients:

  • On August 14th, we hit the internet airwaves with our first Epilepsy Therapy Project BlogTalkRadio show, called Epilepsy Talk Radio. Dr. Andres Kanner talked with Resource Specialist Patty Shafer on the topic of "Epilepsy and Its Treatment: Talking about Depression and Suicidality."

    Our next show will be Tuesday, September 16 at 8 PM Eastern Time. I will talk with Dr. Daniel Lowenstein, Professor and Vice-Chairman of the UCSF Department of Neurology about the largest research study ever created to understand how genetics influences epilepsy – the Epilepsy Phenome/Genome Project. Please join us and recommend the show to your patients! It's as simple as going to the epilepsy.com homepage and clicking on the link for the show or going to our Epilepsy Talk Radio page.

    After that show, plan to join host Patty Shafer and guest Dr. Eric Kossoff, Assistant Professor of Neurology and Pediatrics at Johns Hopkins University, September 24 at 9 PM Eastern Time to talk about the ketogenic diet, the low glycemic index diet and the modified Atkins diet. Dr. Kossoff is the editor of KetoNews on epilepsy.com and an internationally regarded expert on dietary therapies for epilepsy.
  • Dr. Eric Kossoff, editor of epilepsy.com’s KetoNews, writes this month about a remarkable young girl named Grace, and the Magic Diet booklet that Grace and her family composed and illustrated.
  • While we're on the topic of the ketogenic diet, we've made it easier for you to find doctors who prescribe this diet.
  • Now that schools are back in session, parents and caregivers have many concerns about school-aged children with epilepsy. Here’s a guide for teachers and parents, advice on teasing and how to tell others what they need to know, and information about home schooling and charter schools.

With my best wishes,

Steven C. Schachter, MD
Editor-in-Chief

Go

MARK YOUR CALENDAR

Upcoming epilepsy-related conferences, symposia, and events include:

Sept 21-Sept 25, 2008
8th European Congress on Epileptology
Berlin, Germany

Oct 15-Oct 17, 2008
11th European Conference on Epilepsy and Society (IBE)
Marseille, France

Oct 22-Oct 26, 2008
Asian Oceanian Congress of Neurology (AOCN 2008) & 16th Annual Conference of the Indian Academy of Neurology (IANCON 2008)
New Delhi, India


WE NEED YOUR HELP

professionals/epilepsy.com is building a resource section of useful practice tools for the professional community. If you have a form, patient information sheet, or other useful handout for patients with epilepsy, and you’d like to share it with thousands of your colleagues by adding it to the resource section of epilepsy.com/professionals, please email it to info@epilepsytherapyproject.org or fax it to (540) 687-8066, and we’ll take it from there. Thanks!!


ABOUT THE EPILEPSY THERAPY PROJECT

The Epilepsy Therapy ProjectThe Epilepsy Therapy Project is a 501 (c) (3) not-for-profit corporation. The organization was founded by parents of young children with epilepsy, along with their children’s doctor, a leading researcher and clinician in the field of epilepsy. Our mission is to advance new treatments for people living with epilepsy.

The Epilepsy Therapy Project is also the sponsor of epilepsy.com and epilepsy.com/professionals. We are working to build epilepsy.com/professionals into the most comprehensive source of information, tools, and interchange available online for patients, practicing neurologists, and for the research and therapy development community.

To learn more about our programs, please visit us at: www.epilepsy.com/epilepsy_therapy_project.

This email was sent by: Epilepsy Therapy Project
P.O. Box 742 Middleburg, VA, 20118, USA

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